| "Do not go where the path may lead, go instead where there is no path - and leave a trail." ~ Ralph Waldo Emerson ~ |
| Communicaticating with the family of a child with cancer. |
| ORPHANS OF THE CANCER STORM |
English is the richest language in the world, yet at times of great trial, it can also seem totally inadequate. However, some of the simplest words can bring the greatest strength and encouragement. The following suggestions from parents give an idea of what you can say to help the family. |
| Disclaimer This information page has been prepared by an individual who does not have medical training. Contributions have been shared by the parents of children diagnosed with retinoblastoma or optic glioma. Orphans of the Cancer Storm cannot make any assurances relating to the validity of medical information contained within this page. The OCS website is intended for information purposes only and should not be used as a guide to diagnosis or treatment. If this information raises any concerns about your child’s condition or care protocol, discuss them with his or her paediatrician, oncologist, or other appropriate medical professional who has knowledge of the case. |
| "I am very sorry." "I wanted to call you, but just don't know what to say." |
| "'I am praying for you' and 'Is there anything specific you would like us to pray for?' - knowing we have the prayers of our friends fills us with strength to face each day." "'How are the children?' - Remember that little brothers and sisters suffer too, and that causes us much pain as parents. Let us know you are thinking about our other children as well as our sick child." "There is always room for hope." "The most encouraging words we heard were, 'Sarah has an inner strength that will get her through this. She has two wonderful roll models for parents' (in that her parent's are both blind). Those words helped lift my spirits when I was concerned about the future." “be understanding and tolerant to special needs (disabilities, food restrictions, child's schedules, moods and physical appearance).” "Be as honest and open as possible." "Offer help in any way possible and keep offering the help because situations change." |
| "We would like to prepare meals for you on clinic days. When would be the best time to bring them over?" "Would you like us to drive Lucy to school and bring her home at the end of the day? We go that way anyway so it really is no trouble." "We would be so glad to look after Lucy whenever you need to take Emma to the hospi tal. Feel free to call us whatever the time of day or night, and we will come straight over." "We would love to take care of your pet(s) whilst you are at the hospital if that will help." "My wife and I would like look after your garden for you. When would be a good day for us to come over?" "Would it help if I come to clean the house once a week for you? It will mske me feel I am doing something to help." "I do our weekly grocery shop on Tuesdays. Would you like me to take a shopping list for you at the same time?" |
| Families will appreciate your honesty, and will often take your comment as a prompt to communicate to you what helps them most. |
