| ORPHANS OF THE STORM |
| General Cancer Informaiton This section contains links to sites containing information about: Cancer education; prevention; info by cancer type; clinical trials; research; advocacy. |
| American Cancer Society www.cancer.org Provides information, support groups, patient link up, summer camp programmes for children with cancer, equipment, help with hospital transport and accommodation near treatment centres, The information on this site can also be accessed in Spanish. CancerBACUP (British Association of Cancer United Patients. www.cancerbacup.org.uk British cancer information service, giving up-to-date information, practical advice and support to patients, families and professionals. All publications available online and in print. Maintains a national telephone information service staffed by qualified oncology nurses. Cancer Help UK www.cancerhelp.org.uk Provides a free information service about cancer and cancer care for people with cancer and their families. Has an extensive resource base and provides a database of current clinical trials. Cancer Research UK www.cancerresearch.org.uk http://science.cancerresearchuk.org/ The world's largest volunteer funded cancer research foundation. Provides information on recent research and developments, and a list of affiliated clinical cancer centres and research institutes in the UK. Canadian Cancer Society www.cancer.ca Provides information, support groups, patient/family link up, summer camps for children with cancer, short-term emergency financial assistance with treatment costs, help with hospital transport and accommodation near treatment centres, Major contributor to the National Cancer Institute of Canada (www.ncic.cancer.ca). The information on both these sites can also be accessed in French. Candlelighters Childhood Cancer Foundation (US) www.candlelighters.org Provides advocacy, information and support for families coping with childhood cancer. Includes sibling specific support and BaseCamp in Florida for children with cancer. Candlelighters Childhood Cancer Foundation (Canada) www.candlelighters.ca Provides advocacy, resource centre and support for families coping with childhood cancer. Provides each newly diagnosed family with a "Reach For The Sky" pack. Also offers Back To School kits on loan for classroom use, and college bursaries to childhood cancer survivors. Clinical Trials (US) www.clinicaltrials.gov A comprehensive searchable database of clinical trials being conducted across the US. Cure Our Children Foundation (US) www.cureourchildren.org Created by the father of a child with cancer, CUCF provides extensive educational materials to families on diseases, treatments, and treatment facilities. Runs a second opinion referral service. Department of Health - Cancer (UK) www.doh.gov.uk/cancer Information on the NHS Cancer Plan. Institute of Cancer Research - London (UK) www.icr.ac.uk Provides information, educational resources and up-to-date reviews of ongoing research. Keaton Raphael Memorial - a beacon of hope for children with cancer (US) www.childcancer.org Provides information on childhood cancer and supports various advocacy campaigns. Laura Crane Trust (UK) www.lauracranetrust.org Founded by the family of a young lady who died age 17, the trust supports research into cancers affecting young people aged 15-25. National Cancer Institute (UK) http://cancerweb.ncl.ac.uk/cancernet/ A wealth of information, including PDQ statements, a dictionary and online medical library. National Cancer Institute (US) www.nci.nih.gov www.cancer.gov/cancerinformation/cancertype/childhood/ Staffs a national telephone/CANCERFAX information service. Funds cancer research. Also maintains PDQ (Physician Data Query) http://cancer.gov/cancerinfo/pd, a database containing the latest information about cancer treatment, screening, prevention, genetics, supportive care and clinical trials. National Childhood Cancer Foundation/ Foundation for the Children's Oncology Group (US) www.nccf.org www.ConquerKidsCancer.org Funds research being conducted world-wide by the Children's Oncology Group. Advocates the cause of childhood cancer at national policy-making level. Publishes "Childhood Cancerline", a magazine detailing new treatments and advances in research. The website carries survivor stories. Also sponsors the Childhood Cancer Awareness website at www.childhoodcancerawareness.org and the Conquer Kids Cancer Gold Ribbon Days in Washington DC during the annual Childhood Cancer Awareness Month (September). National Coalition for Cancer Survivorship (US) www.canceradvocacy.org A survivor-led organisation advocating improvements in access to healthcare for long term survivors of cancer. Provides a free Cancer Survival Toolbox to anyone affected by cancer, in addition to an extensive publications list. Maintains CanSearch, a guide to online cancer resources. National Institute for Clinical Excellence (UK) www.nice.org.uk/nice-web Part of the NHS. Provides guidance for healthcare professionals, patients and their carers, to help inform decisions about treatment and healthcare. OncoLink http://oncolink.upenn.edu/ Comprehensive cancer resources from the Abramson Cancer Centre at the University of Pennsylvania. Includes a medical library, current issues in the news, a database of clinical trials at UP and video/audio presentations from various conferences. Be warned: Oncolink does not allow links to individual pages, so if you want to save something for reference, make a note of where you found that info, or print/save it to disk. United Kingdom Register of Cancer Clinical Trials www.ctu.mrc.ac.uk/ukcccr/home.html Provides a searchable register of clinical trials in oncology, as well as background information on clinical trials.al Journals |
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| "Do not go where the path may lead, go instead where there is no path - and leave a trail." ~ Ralph Waldo Emerson ~ |
| ORPHANS OF THE CANCER STORM |