| Emotional And Practical Support |
| Academy for Guided Imagery (US) www.interactiveimagery.com Aims to teach people to access and use the power of the mind/body connection for healing. Has a small resource section and a directory of local practitioners. Angels for Hope http://www.angelsforhope.org Members of this organization crochet angels, butterflies and smiley faces which are sent out all over the world to those who need hope. There is no cost for this service, and no age restricition, although caution should be used if giving these gifts to young children. Request one of these hope-gifts online. Association for the Care of Children's Health (US) Does not currently have a website 7910 Woodmont Ave., Suite 300 Bethesda, Md. 20814 (609) 224-1742 Supports the psychosocial health of children and their families. Publishes extensively, sponsors conferences and provides advocacy resources. Believe In Tomorrow (US) www.believeintomorrow.org Provides hospital and retreat accommodation to families of seriously ill children. Also runs supportive care programmes for children and their siblings. Bristol Cancer Help Centre (UK) www.bristolcancerhelp.org Pioneered a holistic approach to cancer management and care. Runs a year-round programme of workshops and residential courses that encompass dietary advice and vitamin supplements, relaxation, visualisation, meditation, art therapy and healing. British Association for Counselling and Psychotherapy www.bac.co.uk Provides information on counselling for cancer patients and their families and a list of local counsellors affiliated with the BACP. Cancer Care Society (CARE) UK The CCS website is currently under construction. E.mail: info@cancercaresociety.org TEL: 02380 672200 Offers emotional support to all affected by cancer. Provides counselling, aromatherapy, reflexology and support groups. Also offers a comprehensive library on many cancer related topics, and holiday accommodation - available at a nominal charge. Cancer Care (US) www.cancercare.org A national organisation providing 1-1 counselling, specialist support groups, education programmes, information support and referrals and limited financial assistance. Cancer Hope Network (US) www.cancerhopenetwork.org Provides free and confidential 1-1 support to patients and families, from trained volunteers who have undergone similar experiences. Cancerlink (UK) www.cancerlink.org Provides a free and confidential support services for people affected by cancer, linking them with emotional and practical help close to home. Cancer Wellness Center (US) www.cancerwellness.org Offers free psychological, emotional, and social support to families dealing with cancer. Centre for Attitudinal Healing (US) www.healingcenter.org Has a good bookstore, including "Advice to Doctors and Other Big People....from Kids", a collection of children's thoughts and feelings relating to their medical care. Sponsors local and national workshops for children aged 6-16 facing serious illness and disability, and their siblings. Maintains a "links" page to other centres around the world. Chai Lifeline/Camp Simcha (US) www.chailifeline.org A Jewish organisation providing support for families in crisis. Activities include visits for hospitalised/housebound children, medical referrals, financial assistance and a kosher summer camp for children with cancer. Childhood Cancer Ombudsman Programme (US) http://www.childhoodbraintumor.org/ombuds.html An initiative of the Childhood Brain Tumour foundation (US) which provides information and referrals related to education, rehabilitation, and employment discrimination of childhood cancer survivors. Also supports a free second opinion scheme. Child Life Council (US) www.childlife.org A professional organisation which promotes the wellbeing of children and families in the hospital environment through the development of the Child Life profession. Provides in-service training, conferences, publications and information. Christian Lewis Children's Cancer Care (UK) www.childrens-cancer-care.org.uk Offers practical and emotional support to families of children with cancer. Provides play therapy, financial aid and family retreats. CCLASP - Children with Cancer and Leukaemia, Advice and support for Parents www.cclasp.co.uk Established for parents, by parents. Offers emotional support for families. CLIC-UK - Cancer and Leukaemia In Childhood (UK) www.clic.uk.com Provides support, advice, and general help to children, teens, and their families who are dealing with leukaemia and other cancers. Also provides hospital accommodation and play specialists for paediatric oncology centres. Contact A Family (UK) www.cafamily.org.uk Puts parents of disabled children in touch with other families dealing with the same condition. Also advises on other local and national sources of disability-specific support. Coping Magazine (US) www.copingmag.com Publishes a bi-monthly magazine for people affected by cancer. Jesse's Foundation for Music and Dance Therapy. www.jessefoundation.com Established in honour of Jesse Farquarson, who survived advanced retinoblastoma, this foundation creates and supports music and dance therapy programs in Ontario, Canada, which benefit seriously ill children and their siblings. Irish Cancer Society (Ireland) www.irishcancer.ie Provides information and support for people dealing with cancer across Ireland. Maintains a confidential FreeFone Cancer Helpline, which is staffed by fully qualified nurses trained in cancer care. Also provides help with home care nursing. The Katie Trust (UK) www.neals.demon.co.uk Dedicated to the memory of a young girl who died of medulloblastoma, provides funding for research, as well as emotional and practical support to families in the North East of England. Kids Cancer Network (US) www.kidscancernetwork.org Formerly the Friends Network, provides emotional support to families coping with childhood cancer. Also produces and distributes The Funletter, a children's activity magazine (also available in Spanish). Kids Need Prayer (Int'l) www.kidsneedprayer.net Provides an international prayer partnership supporting families of children in need of prayer for healing and protection. Maintains an email notification list and web pages for individual children. Let's Face It (UK) www.letsfaceit.force9.co.uk Support network for people with facial differences. Provides support, and extensive educational resources. Let's Face It (US) www.faceit.org As above. Locks of Love www.locksoflove.org Provides hairpieces to financially disadvantaged children across the US. Has information on how to donate hair and money, and how to request a hairpiece. Macmillan Cancer Relief (UK) www.macmillan.org.uk Provides Macmillan home care nursing support, and a programme of financial assistance for patients in need. The phone line offers information, such as details of local support groups, and emotional support. Marie Curie Cancer Care (UK) www.mariecurie.org.uk Runs eleven hospices throughout the UK, and a national free home care nursing service, providing hands-on care for patients. National Association for the Education of Sick Children, www.sickchildren.org.uk Advocates for better educational provision for sick children. Supports programmes of distance learning for hospitalised and housebound children through the Satellite School, an online education system. www.satelliteschool.org.uk National Children's Cancer Society (US) www.children-cancer.com Advocates the cause of children's cancer through financial assistance, family link up programmes, education and awareness campaigning. Distributes Nikki's BearTM and produces two books (free to US persons affected by cancer) entitled "The Mountain You Have Climbed" (for teen survivors) and "Sammie's New Mask" colouring book (for young friends of children with cancer) The Cancer Crusade (and The Survivor Movie). www.thecancercrusade.com and www.thesurvivormovie.com From survivor couple Kathy and Roger Cawthon, an organisation offering hope and encouragement to survivors, through humour, seminars and published materials. Producers of the hugely inspirational and encouraging Survivor Movie. The site contains a list of resources and products for sale, including a great T-shirt which reads "I have cancer, but cancer does not have me". There are also downloads of "10 things to do when you don't know what to do" and Kathy's poem "The Big C". Be encouraged! The Neverending Squirrel Tales. www.squirreltales.com A forum for parents and children to share practical tips and encouragement through their experiences of childhood cancer. The School Letter http://www.squirreltales.com/articles/school_letter.html An open letter, written to the parents of classmates by the father of a child still receiving chemo when she returned to school. Parents Caring and Sharing (Tri-State) Does not currently have a website c/o Chumie Bodek 109 Rutledge St. Brooklyn, NY 11211 Tel: (718) 596-1542 Fax: (718) 596-9002 Provides support for families of Jewish Orthodox children in the tri-State area. Ronald McDonald House Charities (Int'l) www.rmhc.com Provides family accommodation within and near paediatric treatment centres around the world. Serves under-accessed communities with mobile paediatric medical facilities. Maintains scholarships and suicide/child abuse prevention programmes. Sargent Cancer Care for Children (UK) www.sargent.org Provides emotional support to families, offers financial grants and free holidays at its own retreat centres. Siblinks www.siblinks.org Offers a programme of events and support, specifically for siblings of children with cancer. Speaking of the Children http://www.bcchf.ca/speaking_feature_spring_2002.shtml A superb article, printed by the British Columbia Children's Hospital Foundation, about the provision of support for siblings of children with serious illnesses. Tenovus Cancer Information Centre (Wales) www.tenovus.com An information resource on all aspects of cancer, and practical and emotional support for cancer patients and their families. Provides a drop-in centre and support group as well as a Freephone Cancer Helpline staffed by nurses, social worker and counsellor. Touchstone Support Network http://www.php.com/dopage/touchstone An initiative from Parents Helping Parents, providing practical and emotional support for families coping with chronic and/or life-threatening illnesses. Services include hospital/home visits, referrals, support groups, a newsletter and a telephone helpline. They also offer programmes for siblings of children with special needs. Ulster Cancer Foundation (N. Ireland) www.ulstercancer.org Provides an information and resource centre, public and professional education, a cancer information helpline, rehabilitation programmes and support groups for patients and relatives dealing with cancer in Northern Ireland. |
| ORPHANS OF THE STORM |
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| "Do not go where the path may lead, go instead where there is no path - and leave a trail." ~ Ralph Waldo Emerson ~ |
| ORPHANS OF THE CANCER STORM |