| "Do not go where the path may lead, go instead where there is no path - and leave a trail." ~ Ralph Waldo Emerson ~ |
| Survivor Resources |
| Cancer Cured Kids (US) Does not currently have a website PO Box 189 Old Westbury, NY 11568 (516) 484-8160 Organisation dedicated to the quality of life of children who have survived cancer. Produces "Standing Together, Standing Strong", a school reintegration video designed to teach about childhood cancer, treatments, side effects and impact on functioning and schooling. Cancervive (US) www.cancervive.org Founded by a childhood cancer survivor, and dedicated to improving the quality of life for other survivors. CanTeen www.canteen.ie National support group for teens who have/had cancer. Meets 8-9 times per year for social weekends away. Childhood Cancer Ombudsman Programme (US) www.childhoodbraintumor.org/ombuds.html An initiative of the Childhood Brain Tumour foundation (US) which provides information and referrals related to education, rehabilitation, and employment discrimination of childhood cancer survivors. Also supports a free second opinion scheme. Childhood Cancer Research Group www.ccrg.ox.ac.uk Oxford University based research group which carries out epidemiological and follow-up studies of childhood cancer, and is responsible for the UK National Registry of Childhood Tumours. National Association of Protection and Advocacy Systems (US) 900 2nd Street NE, Suite 211 Washington, DC 20002 (202) 408-9514 Offers hlp with Social Security income and applications, disability rights issues, and special education law violations. Office of Cancer Survivorship (OCS) at the NIH (US) www.survivorship.cancer.gov OCS funds research into survivorship issues and is dedicated to developing the infrastructure - such as databases and researcher networks - that supports the follow-up needed to study long-term survivors. Supports patient, physician, and public education programmes about cancer survivorship, and works towards interventions that will lessen the burden of cancer survivors. National Children's Cancer Society (US) www.children-cancer.com Advocates the cause of children's cancer through financial assistance, family link up programmes, education and awareness campaigning. Distributes Nikki's BearTM and produces two books (free to US persons affected by cancer) entitled "The Mountain You Have Climbed" (for teen survivors) and "Sammie's New Mask" colouring book (for young friends of children with cancer). National Coalition for Cancer Survivorship www.canceradvocacy.org Addresses the needs of long-term cancer survivors, and advocates for changes in healthcare to maximise survivors' access to optimal treatment and support. Has an extensive publication list. |
| ORPHANS OF THE CANCER STORM |
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