| "Do not go where the path may lead, go instead where there is no path - and leave a trail." ~ Ralph Waldo Emerson ~ |
| Information About Retinoblastoma |
| Canadian Retinoblastoma Society www.rbsociety.ca Provides information and support for families and individuals dealing with Rb. Organises symposiums and social activities and distributes resources about Rb. Also www.retinoblastoma.ca, a family resource page. Dr. David H. Abramson's Retinoblastoma site. www.retinoblastoma.com An informative resource from one of the world's leading Rb experts. Contains information on genetics, symptoms, diagnosis, staging, treatment and long term consequences, including a discussion on the risk of second cancers. Eye Cancer Network www.eyecancer.com/conditions/Retinal%20Tumors/retino.html An simple but informative section on the basics of Rb. Contains information on genetics, second cancers, Rb disease staging and chemo-reduction. Has a number of links to articles on chemotherapy for Rb. Learn About Cancer: Retinoblastoma www.cancersourcekids.com/LearnAbout/ intro.cfm?DiseaseID=47&typeID=40&UserTypeID=1 A great series of pages from CancerSource Kids, designed for children who were treated for Rb. Contains an explanation of cancer in general, Rb and its diagnosis/treatment, the story of two survivors and life after rb. PDQ statement on Rb. www.nci.nih.gov/CancerInfo/doc_pdq.aspx?viewid=53e605da-ae32-4558-ba1e-898aab7b0255&version=patient A detailed description of Rb, staging, treatment and recurrence from the National Cancer Institute. Health Professionals version contains links to the Reese-Ellsworth and St Jude's Research Hospital Classifications of Rb. http://www.cancer.gov/espanol/pdq/tratamiento/retinoblastoma As above, but in Spannish. The Childhood Eye Cancer Trust - UK (formerly the Retinoblastoma Society) www.chect.org.uk Provides information and support for families and individuals dealing with Rb. Funds research and works to raise awareness of the cancer. Organises family days, puts families in touch with each other and produces a society newsletter - Orbs. Retinoblastoma Factsheet. www.cancerbacup.org.uk/info/child-retinoblastoma.htm Information on Rb at CancerBACUP-UK. Retinoblastoma: treatment statement for Health professionals. http://www.meb.uni-bonn.de/cancer.gov/CDR0000062846.html English language information from German National Cancer Institute, University of Bonn. Contains links to various medical journal articles. The Rb Site/Die Retinoblastom Seite www.retinoblastom.de German information site on retinoblastoma. Last updated: 31 July, 2004. |
| ORPHANS OF THE CANCER STORM |
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