| "Do not go where the path may lead, go instead where there is no path - and leave a trail." ~ Ralph Waldo Emerson ~ |
| Rb Family Home Pages |
| Annabelle Jones www.childrenofpromise.net/annabelle.html The website of an Alabama girl who had bilateral Rb. Annabelle has been supported, throughout her cancer, by Children of Promise and Kids Need Prayer partners around the world, and continues to receive that support. Avery's Journey http://www.averysjourney.ca Avery's Journey is a fundraising campaign established by the family of Avery Dixon-Williams, who was treated for bilateral Rb at Toronto's Hospital for Sick Children. The website tells Avery's story, and carries useful Rb resources, including a downloadable awareness poster. Bekah Anderson's Story www.computerseraph.com/Bekah.htm The journey of a young Connecticut girl with bilateral Rb. Includes a great little story "My Sister Can't See Me", written for her older brother by their father. Cindy Amethyst Neilson's Page. www.geocities.com/cindyamethyst The website of an Australian girl who had unilateral retinoblastoma. Daisy Lloyd - The Daisy Fund www.thedaisyfund.org The Daisy fund was established in 2003 to help the Lloyd family meet the costs involved in taking their daughter, Daisy, to Canada for treatment after all options for saving her remaining eye were exhausted in England. Daren Andrew Fowler's Retinoblastoma Page. www.darensretinoblastomapage.homestead.com Built by the mother of a young boy from Florida who had unilateral Rb, later diagnosed as bilateral. Site currently inaccessible. Jesse Farquharson http://jessesfoundation.com The story of a little "miracle" boy fighting metastatic retinoblastoma. His life was saved by the use of his own stem cell-rich cord blood, which his parents saved at birth. The Joey Bergsma Retinoblastoma Awareness Page www.lovejoey.com and www.geocities.com/loveujoey3 Created by a Pam Bergsma, whose grandson died at the age of three from metastatic retinoblastoma. Has much useful information about the main symptom of rb, leukocoria (the white eye reflection), and effective screening. Nick Mendez www.nickrocks.us Nick's own page which his family is helping him to build, enabling this elementary school boy to share the story of his second cancer - Alveolar Rhabdomyosarcoma, a malignant sinus tumour. Nick was diagnosed with unilateral Rb aged 2.5yrs. Sarah Renee Daniel - A Gift of Life. www.sarahrenee.org A memorial fund project set up in honour of 5yr old Sarah Renee Daniel, who lost her fight with pineoblastoma in October 2002. A Gift Of Life aims to provide resources to support Child Life programmes in California hospitals. Sarah's Retinoblastoma Page http://homepage.idx.com.au/muznsam/ An Australian family's experience of unilateral Rb. Sena Graham - Sena's Eyes. http://home.mchsi.com/~senaseyes Created by Sena's mother, Lori, who is dedicated to pursuing the vital legislation needed for mandatory dilated eye exams for all babies. This superb site contains updates on the campaign, as well as Sena's story, and details of the family's "Sena's Blankies" program, which provides hand made blankets to newly diagnosed children. Verity Clarkson's Retinoblastoma Page. www.btinternet.com/~web.clarkson A British family's experience of unilateral retinoblastoma. Last updated: 02 January, 2004. |
| ORPHANS OF THE CANCER STORM |
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