| "Do not go where the path may lead, go instead where there is no path - and leave a trail." ~ Ralph Waldo Emerson ~ |
| ORbIT Children's Stories |
| ORPHANS OF THE CANCER STORM |
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| Anthony Unilateral Rb, diagnosed at 17months. Orbital recurrence at 22months. Anthony was treated at Mass Eye & Ear Institute and Mass General Hospital in Boston, MA. Da'Monique Bilateral Rb diagnosed at 1yr old. Da'Monique is treated at Bascom Palmer Eye Institute, Miami FL. Danielle Unilateral Rb diagnosed at 5 years. Danielle was treated at Toronto's Hospital for Sick Children. Gorata Unilateral Rb diagnosed at 9 months, Orbital recurrence at 2.5yrs old. Rati was treated at Nyambagwe Hospital, Francistown, Botswana and Sick Kids Hospital, Toronto, Canada. Jordan Unilateral Rb diagnosed at 9 months. Jordan was treated at the Louisiana State University Eye Centre and New Orleans Children's Hospital. Katelyn Unilateral Rb diagnosed at 4 years. Katelyn was treated at Wills Eye Institute in Philadelphia, PA. Katy and Harry Sister and brother diagnosed bilateral and unilateral respectively. Katy and Harry were treated at Great Ormond Street Children's Hospital and St Bart's Hospital in London, Birmingham Children's Hospital and Sick Kids Hospital, Toronto, Canada. Maria, Aimee and Stephen Mother, son and daugher diagnosed with Rb in infancy. Maria was treated in Pueto Rico, and her children at Columbia-Presbyterian Hospital in New York. Stephen also battled rhabdomyosarcoma, aged 12 years. Sarah's Memorial Bilateral Rb diagnosed at birth, Pineoblastoma diagnosed aged 4yrs. Sarah was treated at UC Davis in Sacramento, CA. and UC San Francisco, CA. Sophia Pineoblastoma brain tumour diagnosed at 10months. Sophia was treated at a Central NY hospital, Tx Children's Hospital and the Burzynski Clinic, Houston, TX. Hers is the story of a survivor. Zachary Bilateral Rb diagnosed aged 9 months. Zack was treated at UC San Francisco, CA. |
| Thank you to all the individuals and families who have kindly shared their experiences of retinoblastoma. |
| Disclaimer The stories in this section have been written by the parents of children diagnosed with retinoblastoma eye cancer. Orphans of the Cancer Storm cannot make any assurances relating to the validity of medical information contained within these pages. These pages are intended for information purposes only and should not be used as a guide to diagnosis or treatment. If this information raises any concerns about your child’s condition or care protocol, discuss them with his or her paediatrician, oncologist, or other appropriate medical professional who has knowledge of the case. |