| "Do not go where the path may lead, go instead where there is no path - and leave a trail." ~ Ralph Waldo Emerson ~ |
| Neurofibromatosis Support |
| The Children's Tumor Foundation (formerly "National Neurofibromatosis (NF) Foundation") (US) www.ctf.org and www.nf.org Arguably the most comprehensive Nf resource on the internet. Here you will find almost everything: explanations about NF1and2, latest research, publications, where in the world to find NF treatment clinics (one section dedicated to the US - state by state, one for the rest of the world - country by country), a chat room and message boards, and even an NF Kids Summer Camp! You can also find a list of NF organisations throughout the world. www.nf.org/international_affiliates NF, Northern California (US) www.nfnocal.org Email: dbell@nfnocal.org P.O. Box 1234 Vacaville, CA 95696 Phone and Fax: 707-469-0467 This support organisation was established in 2004 by the parents of a child with NF. It aims to provide a safe and welcoming environment for families to share experiences and gain support. NFNoCal runs a program of meetings, and also supports fundraising for research activities. This is the only community based NF support group that OCS is aware of. Neurofibromatosis and associated intracranial tumors in children http://www.virtualtrials.com/video.cfm This is a video of the 30minute presentation given by Catherine Ruebenacker-Mazzola MD, to the August 2003 Pediatric Brain Tumor Conference at Hackensack University Medical Center, NJ. This page is the idex of online videos at www.virtualtrials.com. Scroll down until you find this reference, then choose the appropriate option in which to view the video. |
| ORPHANS OF THE CANCER STORM |
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