| "Do not go where the path may lead, go instead where there is no path - and leave a trail." ~ Ralph Waldo Emerson ~ |
| Brain Tumour Online Communities. |
Optic Glioma E-group http://groups.yahoo.com/group/optic-glioma/ Established by Al Musella of the Musella Foundation. This is the only online support group for families facing a diagnosis of optic nerve glioma and is very, very highly recommended as a source of support and information sharing. Low Grade BT List http://listserv.acor.org/archives/lowgrade-bt.html Maintained at ACOR, the Association of Cancer Online Resources, by The Brain Trust. The BRAINTMR list http://www.braintrust.org/services/support/braintmr/ Maintained by The Brain Trust, this is quite ppossibly the busiest and most comprehensive brain tumour email list on the internet. Ped-Onc: The Paediatric Cancers Online Support Group http://listserv.acor.org/archives/ped-onc.html Founded and maintained at ACOR, the Association of Cancer Online Resources. RARE-CANCER: The Rare Cancers Discussion Group http://listserv.acor.org/archives/rare-cancer.html Founded and maintained at ACOR, the Association of Cancer Online Resources. The Temozolomide list. http://www.virtualtrials.com/temozolomidelist.cfm Established by the Musella Foundation as a forum for the discussion of the drug, temozolomide (temodar), a developmental treatment for brain tumours. Brain Activist. http://groups.yahoo.com/group/brain-activist/ An online community for those advocating change and improvement for people dealing with brain tumours. You can find out more about Brain Activist at www.CureBrainCancer.org EducatingBTKids - Educating Brain Tumor Kids http://groups.yahoo.com/group/EducatingBTKids/ An education resource forum for teachers, parents, and social workers on the subject of educating children with Brain Tumors. BT Healthy Kids - run by Kelli Lefebre. btcaregivers - run by Sandie Norton. http://www.virtualtrials.com/jenny.cfm Two lists run by individuals and facilitated by the virtual trials website. Survivors Ped-ONC Survivors http://listserv.acor.org/archives/ped-onc-survivors.html Founded and maintained at ACOR, the Association of Cancer Online Resources. LT-SURVIVORS: Cancer Long Term Survivors Discussion Group http://listserv.acor.org/archives/lt-survivors.html Founded and maintained at ACOR, the Association of Cancer Online Resources. |
| ORPHANS OF THE CANCER STORM |
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