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| The General Resource Centre This section contains information relevant to both tumour types in the following subject areas: General Resource Links directory General Treatment Information The Dolphin Pages (advice and suggestions from parents) |
| SONGS - Sharing Optic Nerve Glioma Support. This section relates specifically to optic gliomas. Current sections cover the following areas: A general overview of Optic Glioma General Resource Links directory information about the management of OG Dino the Rb dinosaur |
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| Where stated, material on this website is property of its owner (Abby White), and protected by copyright. Please respect the privacy of all children and adults featured on this site, and refrain from copying any photographs, graphics or text without first asking Abby. You can email Abby by using the CONTACT FORM linked from every page within the site. Thank you |
| "Do not go where the path may lead, go instead where there is no path - and leave a trail." ~ Ralph Waldo Emerson ~ |
| Welcome to ORPHANS OF THE CANCER STORM PROVIDING SUPPORT FOR FAMILIES AND INDIVIDUALS |
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| OPTIC GLIOMA |
| RETINOBLASTOMA |
| times since October 8th 2003. |
| Look out for the gold ribbon. It will gradually appear throughout this site to indicate links to other websites which may be particularly useful. |
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| This site is divided into three sections, each of which contains elements reflecting the above aims. To make navigation easier, the sections have been colour coded. If Java is not enabled on your computer, use the text links at the foot of each page to navigate this site. |
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| ORbIT - Offering Retinoblastoma Information and Togetherness. This section relates specifically to Retinoblastoma. Current sections cover the following areas: The ABC of Rb - a guide for newly diagnosed families. A general overview of Retinoblastoma Leukocoria - a guide to the "Cat's Eye" reflex. General Resource Links directory Information about the management of Rb A collection of family stories The Rb Family Directory - list your info and find others affected by rb in your area. A Tribute to Dino - is the Rb dinosaur really extinct? |
| You may also wsh to visit the main ACKNOWLEDGEMNTS page, find out the story behind the name ORPHANS OF THE CANCER STORM, and find out about ABBY, who maintais this site. |
| Please feel free to visit all areas of this site - whether you are a carer, survivor, relative, friend, educator or just curious. You are very welcome. Please do take time to read the DISCLAIMER and PRIVACY POLICY. and sign the before you leave. |
| Both diseases are listed with the United States National Organisation for Rare Disorders, which defines a rare "orphan" disease as one which affects less than 200,000 people across America. Click here to read the citations. Due to their rare nature, it is often very hard for families to access resources about these tumours, and to share their experiences with other families in a similar situation. |
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| Please visit the IRDF website to find out about this vital organisation, which is working towards a better future for all children with rb, wherever they live in the world. |
| Read about the problems of caring for children with cancer in poverty stricken Africa, and Abby's recent visit to a hospital in Kenya. |
| This website is dedicated to the dissemination of information about two rare tumours of childhood, retinoblastoma (a malignant eye cancer) and optic glioma (a brain tumour). |
| Saving Precious Young Lives |
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